“What should I do after I’ve been diagnosed with Alzheimer’s dementia?” is likely a question you’re asking if you are showing early symptoms of Alzheimer’s or dementia.

We know this is a stressful time for you and your family, and we’re here to support you. A range of emotions can accompany an Alzheimer’s or dementia diagnosis. Navigating memory loss can be challenging for everyone involved, and thinking about the future can seem overwhelming when you don’t know where to begin.

You're Not Alone

Your family, your friends, people in your community, and our memory care experts here at Episcopal Church Home are all here to support you.

While there is currently no cure for Alzheimer’s dementia, there are steps you can take to slow its progression. Here are some initial steps you should take after you’re diagnosed with Alzheimer’s or another form of dementia:

1. Decide Who to Share Your Diagnosis With

Opening up about your health can feel overwhelming, and it may seem easier to keep it to yourself. However, having a strong support system is essential—not just emotionally, but for your overall safety and well-being.

Some people choose to share their diagnosis only with close family, while others include trusted friends or caregivers. There’s no right or wrong approach—this is your journey, and what matters most is surrounding yourself with people who can offer you support.

Be sure to inform your primary care physician and any other healthcare providers involved in your care, so they can offer the best treatment and guidance moving forward.

Related Blog: What Exactly is Memory Care?

2. Determine Your Care Plan

It’s important to put a care plan in place as early as possible—one that reflects your needs, wishes, and values, and gives your family peace of mind. In the early stages of Alzheimer’s or dementia, caregiving may be handled by loved ones who are willing and able to assist with daily tasks and in-home care. As you plan, also consider community-based services that can provide support.

Over time, as care needs increase, non-professional caregivers may struggle to provide the level of support necessary to keep you safe and comfortable. A memory care community, such as the one offered at Episcopal Church Home (ECH), can provide a comfortable environment tailored to meet your needs. These communities offer both safety and a sense of independence, ensuring residents continue to live with dignity and purpose.

Touring a continuing care retirement community early, like the one at ECH, can help you avoid waitlists and ensure a smoother transition when the time comes. Moving before care needs become urgent often allows for an easier adjustment and a greater sense of control.

3. Attend to Your Financial Needs

If possible, consult a financial planner to ensure that your assets and income sources are optimized to support your care needs. Make sure that you and your caregivers can liquidate assets should the need arise.

Don’t forget to consult with your lawyer to properly document your wishes. Share your preferences with your family and caregivers and put important legal documents in place, such as an advance directive, living will, and medical and financial powers of attorney. You may also want to create a financial will or set up a trust for yourself, your spouse, or your descendants. Taking these steps ensures your choices are clearly communicated and respected, even if you’re no longer able to express them yourself.

Related Blog: Is it Time for Memory Care?

The Path Forward

Living with Alzheimer’s or other forms of dementia can be challenging, but many people continue to lead meaningful, fulfilling lives long after their diagnosis. Moving to a memory care community can help make that journey easier. With specially trained staff, supportive programming, and the safety and stability of a continuing care retirement community like Episcopal Church Home, both you and your family can find greater peace of mind.

To schedule a complimentary tour of Episcopal Church Home’s Memory Care community, contact Elizabeth Pace at 502.736.8043 or epace@erslife.org.

Learn more about memory support and care options by downloading our free Dementia Guide.